This will be a quick update as there isn’t too much to say!
Similar to my first biopsy I was told “we will contact you at the end of the week” and both times I was contacted on a Wednesday! I guess bad news travels fast. I was at work yesterday and I got a call at 5:10 from my surgical oncologist letting me know that my second lump was definitely cancer.
If you remember, I am triple negative which means my first tumor was estrogen receptor (ER), progesterone receptor (PR), and HER2 negative. For some reason the HER2 test takes longer to come in so with this tumor all we know is that it is ER and PR negative. I should find out either Friday or Monday if it is HER2 negative, which would make this tumor triple negative as well.
There isn’t much to update as far as a plan because until we know the HER 2 status there is not much we can do. I have spoken to both my surgical oncologist and plastic surgeon and it has been decided that if I am triple negative we will go ahead with surgery on October the 6th at 5:30am (grossssssss). I will have expanders placed in each breast until I can receive the DIEP flap. When I am under they will also take a look at my lymph nodes and biopsy them. I have been informed that a week later I will know if my nodes are infected and if the cancer has spread to other parts of my body. This will also let me know if I need radiation. If I need radiation I will need to wait at least 6 month until after radiation to get my DIEP reconstruction.
Part of me is upset that this process may be stretched out but the other part doesn’t care as long as it saves my life.
If the HER2 is positive we will look at alternative chemotherapy options. Triple Negative cancer has the least amount of options when it comes to chemo but if I am HER 2, it should open me up to more possibilities.
As of now I am upset. I am sitting on my couch with a bottle of red wine and I had a prescription of Xanax filled after work last night. I’m a wreck. It’s okay thought because this feeling will pass. I felt this in May when I was first diagnosed and the swollen eyes and aching heart will pass every day as I come to terms with what is going on. I am lucky to have an amazing family, husband, group of friends, and co-workers who wrap me up in love when I need it the most.
I’ll warn you that you are about to be flooded with photos of my GoFundMe page on your Facebook. I thought this would all be over in November and that it would only take one surgery to fix me but it looks like I was wrong. Even though I have met my co pay and out of pocket maximums we still owe 20% of everything else including surgeries. So I’ll be updating the GoFundMe soon and posting it. If you would like to repost, please do. If not, I completely understand. It is not easy to ask others for help when you just had a wedding and people gave you gifts. I feel like an a-hole but it’s not my fault my body is a bigger a-hole.
Because Nick and I feel so weird about asking for money I feel that we should be 100% transparent: We keep the GoFundMe money is a separate account and it is not spent on anything but cancer related things. Just like our honeymoon money is currently put away in a separate account we do not touch (because we are hoping to one day take a honeymoon- even if we’re like 62 years old). If we need to take money from the honeymoon fund we can do this but….this is about to get morbid…I have asked Nick to use that money for funeral expenses and other end of life crap if it ever gets to that point.
So- sorry for another bummer post. I love you all more than you know!